Welcome
Thank you for your interest in our study examining somatic symptom development in fragile X premutation, full mutation, and non-carrier females. The study includes two surveys that will ask questions about the health and development of children in families that were previously tested for mutations in the fragile X gene. The study is designed to collect and analyze information about children with a range of fragile X repeat sizes who are between six and twelve years old and are female. Before starting, we would like you to agree formally to participate in the study. Once this is completed, you will be contacted with a personal identification number and a link for the first of two surveys in the study. Please feel free to contact the study team with any questions by email (SoS-Study@opwdd.ny.gov) or by phone (718-494-5154).