Niemann-Pick Disease Interview Registration

Pillar Patient Advocates LLC is a private patient advocacy firm specializing in assisting patients navigate the healthcare system. At times, market research firms request our assistance in finding patients to share their journeys through surveys, interviews, focus groups or other types of market research (NOT CLINICAL TRIALS.) We currently have a study for Niemann-Pick Disease caregivers and patients to better understand their perspective regarding treatments, information available, and to identify critical unmet needs of the community. You will be paid if you meet the qualifications and participate in a study. (Completion of this registration survey is not a study for which you receive compensation.) Please take a moment to answer the brief registration questions below. You will be contacted if you qualify for a study. All information is strictly confidential.

Question Title

* 1. Please select the statement that best applies to you.

I am a patient that has been diagnosed with Niemann-Pick Disease

I am a caregiver to a loved one that has been diagnosed with Niemann-Pick Disease

I was a caregiver to a loved one diagnosed with Niemann-Pick Disease, but they have passed away

None of the above